Duke University School of Medicine, Department of Pediatrics, Medical Genetics Division
Description

The Medical Genetics Division of the Duke University Department of Pediatrics sees patients from all over the country (and the world) with rare genetic disease. One such disease is Pompe Disease. Not only does our serve these patients clinical needs, but we also try to annually connect our Pompe patients with other patients and present new information about the disease. This helps them form a sense of community with other families with similar life experiences and develop a patient support system.

Volunteer Activities
Childcare, greeting attendees, aiding with attendee registration, helping run activities for children and families, etc.
Category
Health and Human Services
Web Site
Facebook Page
Contact
Eleanor Rodriguez-Rassi
Contact Phone
(919) 613-1219
Active?
Yes
Nonprofit
No
Address
905 La Salle St, GSRB1
Durham
North Carolina
Durham
United States, 27710